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A Dialysis Journey


 Sittin’ Here On A Saturday Watching My Body Fall Apart
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written Saturday May 13 early a.m.

Have I mentioned my teeth yet? Well, just about half of them have broken off at the gum line. Four in one recent month. Teeth, to me, are the sign of taking care of yourself. And, here I am with one front tooth. Oh my, oh my. That is not a good thing.

The drugs for the transplant are very hard on the body and take their toll in many ways. I figure that that is partially what is causing these teeth to break off and dialysis itself is another reason ... and, they weren’t in decent shape to begin with.

At first, my social worker said something like we’ll get that fixed. And, she walked away from my chair with determination in her walk. Later on, I told one of the doctors [my doctor’s Nurse Practitioner (NP)] and she said something like we’ll have to get that fixed now won’t we. Well, I thought, in both cases, that they knew the protocol for such events. I’m wrong on that! I’m making calls (a couple) and it’s not sounding as if it’s gonna work out real well. See, I am a chicken shit of the highest order when it comes to dental work ... I can’t know ANYTHING about it when it’s happening ... or, I panic beyond belief.

So, I’m on the wait and see plan.

[[Next NOTE: written Saturday the 20th about 3a
I got the form I need to fill out to see how much money I need to pay ... today, one of the doctors knew how this process was supposed to work ... I fill in this form, go to their clinic to be checked out and xrays ... and then go to Dr. Pinch (!!!) oral surgeon and then we go from there!!!! So, now, that’s good information. And once again we’re on the Wait and See Plan!!]]

•~*•^•*•^•**•^•*?*•^•* ? *•?•* ? *•^•*?*•^•**•^•*•^•*~•

Let’s see, I don’t think I have said anything about my hands ...? They hurt ... tingling/stinging ... small spots of pretty intense pain ... sometimes they hurt right much (did you catch that Southern, ‘rite much’? ..!), other times they seem to back off and be more comfortable. I’ve talked with my doctor about them. He had xrays taken; it’s not arthritis; he doesn’t know what it is. I thought it was neuropathy—common from being a diabetic.

So far as I’m concerned, I get the feeling sometimes that they are just gonna keep disintegrating and I won’t be able to do anything with them. Then, it really will be just me and the TV.

[[Another NOTE: written the 20th ...same doctor said today that there is some arthritis ... ok, DUH, somebody for realy gonna let me know? ]]

•~*•^•*•^•**•^•*?*•^•* ? *•?•* ? *•^•*?*•^•**•^•*•^•*~•

I’ve been talking about my new graph from time to time ... it’s still a problem. It seems like it is still being Hard to stick ... it’s continually swollen ... a bad stick creates a bad bruise that seems to last for a couple of weeks. The new graph needs to be used for a month w/o problems before they can take the catheter out of my neck. Looks like this catheter is in for a long haul!! I’ll be talking with a head nurse whose specialty is graphs on Monday. [[DIDN’T HAPPEN]]

Again, I’m on the wait and we’ll see plan. When you’re an ill person, there is A LOT of that. The better you learn to get along with the Wait and See Plan; the better off you will be.

it is ALL IN THE ATTITUDE.
DON’T FIGHT IT; GO WITH THE FLOW

My apologies for all the things I have repeated ... I’m not going to go back and reread what I’ve written ... this is just like things in life, you don’t think about it just one time ... things like these subjects are constantly on your mind until the next level comes along.

thank you
Mandala

Posted by Mandala at 3:22 AM - 3 Comments   Add a Comment  
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  About Me
Author: Mandala
From Central Virginia, USA
 
This blog is about...
This is to help others on dialysis or maybe chronically ill ...
 
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